A quiet genocide of the disabled in America

https://goo.gl/hmqnt8

It’s important to realize that Trump and his administration have made it perfectly clear that the most vulnerable Americans — starting with the disabled — are not among his top priorities because…dare I say it — we made his life a living hell while he was running for President. And no one should ever, ever cross him or else. Now, thanks to his election, insurance companies, state-funded programs, and anyone in charge of moving policy that helps the most vulnerable are bracing for major changes. Many are leaving their positions or fall into a state of paperwork paralysis.

Insurance companies deny procedures, equipment, and medicine because they know that by the time consumers get through an appeal process, their Obamacare or the patient, whichever comes first, will be dead and gone.

State-funded PCA waiver programs are happy to implement “cost saving” new rules, like adding on a 3.5-hour mandated training for new personal care attendants who work for $9.50/hour with no benefits before they are hired. It’s like asking a person who is about to apply for a job at McDonald’s to go to a 3.5 hour, UNPAID, training BEFORE filling out an application.

Or, my favorite, Electronic Visit Verification rules that mandate a PCA and clients get geo-tracked to ensure that they are signing in and out at the exact time stated on their already scrutinized time sheets (sounds a little like house arrest to me). While these moves wouldn’t have gotten a lot of backing before Trump was in office, now, conservative agencies can start pulling this crap because they know that they have the upper-hand and backing from Tom Price, Health and Human Services Secretary, to do so. When people like myself face this kind of undue burden, we can’t find help. When we can’t find help, we either end up in a nursing home or we die.


9 People With Chronic Illness Who Fought Back Against Body-Shaming

A touch of inspiration porn, but these are all real people dealing with body-shaming in their everyday lives....
https://goo.gl/qkFSdj

Chronic illness can alter your body in ways that aren’t always easy to come to terms with. And while you’re working to accept changes like weight fluctuations and scars, other people may pepper you with questions and comments that make you feel even more self-conscious. But that isn’t fair — people with chronic illnesses have the right to feel confident and proud of their bodies and know they’re still beautiful, inside and out.

So we rounded up 9 awesome people with chronic illnesses who had some powerful words to say to those who have shamed them for their bodies — and to fellow “spoonies” who may need some encouragement in feeling confident in themselves. These are people who spoke out against criticism and judgment, and showed the world having an illness doesn’t make you less beautiful  — perhaps words you need to hear today. We’re giving them all a virtual fist-bump.


US Senator Twitter Accounts, 115th Congress (Updated 3/27/17)

https://goo.gl/CeBoqX

If you’re interested in a list of Twitter accounts for the current US Senate (114th Congress), here’s what I’ve found.  The accounts are assigned to one of three categories:

  1. Official Senator accounts, where the tweets are identified as coming from the senator or seem to be in first person,
  2. Senate staff accounts, where the tweets are identified as not coming from the senator or speak of him/her in third person, and
  3. Campaign / other accounts, where it could be the senator’s private account, the campaign account, or some vestige of a previous account.  It may not be active.

At this time, many incoming senators do not have official Twitter accounts or their account names represent their former positions.  I expect this to change over the next month or so.  Consider this list provisional for now.

Please send any corrections my way!


HOW TO CALL B.S. ON BIG DATA: A PRACTICAL GUIDE

https://goo.gl/z9ocC1

Bergstrom believes that calling bullshit on data, big or otherwise, doesn’t require a statistics degree—only common sense and a few habits of mind. “You don’t have to understand all the gears inside a black box in order to evaluate what you’re being told,” he said. For those who were unable to enroll in INFO 198/BIOL 106B this spring, here is some of his and West’s advice:

• Recognize that bullshitters are different from liars, and be alert for both. To paraphrase the philosopher Harry Frankfurt, the liar knows the truth and leads others away from it; the bullshitter either doesn’t know the truth or doesn’t care about it, and is most interested in showing off his or her advantages.

• Upon encountering a piece of information, in any form, ask, “Who is telling me this? How does he or she know it? What is he or she trying to sell me?” (Journalists have their own versions of these questions.) If you’d ask it at a car dealership, West suggested to the students, you should ask it online, too.

• Remember that if a data-based claim seems too good to be true, it probably is. Conclusions that dramatically confirm your personal opinions or experiences should be especially suspect. Bergstrom pointed the class to a study that compared the language used in letters of recommendation for male and female applicants for chemistry jobs. The researchers hypothesized that the letters for men would use more “ability” words (“talented,” “smart”), whereas those for women would use more “grindstone” words (“hardworking,” “conscientious”). Though they found no evidence to back up the idea, readers aware of the very real gender bias in scientific fields inadvertently tweeted the hypothesis, not the results.


Airbnb hosts reject guests with disabilities more often, researchers say

https://goo.gl/JdliYe

Airbnb hosts have already been found to discriminate against guests with "black-sounding" names, and now it sounds like host discrimination extends to guests with disabilities as well.

A study by researchers at Rutgers, highlighted in The New York Times today, found that guests who disclose a disability are less likely to be approved for a room and more likely to be outright rejected.

Guests who didn’t disclose a disability received “pre-approval” from an Airbnb host 74.5 percent of the time. But that number dipped sharply for guests who disclosed a disability. A person with dwarfism had a 60.9 percent approval rate, and a person who was blind had a 49.7 percent approval rate.

Those figures dipped further for guests with cerebral palsy and spinal cord injuries, falling to just 43.4 percent and 24.8 percent, respectively.

The researchers said that some of the gap between pre-approvals could be explained by hosts stopping to ask questions about what accommodations a guest will need.