Michigan Disability Resistance

ME/CFS is an extremely debilitating condition as well as an incredibly common one. It is also usually lifelong (hitting early, but rarely lethal), leaving many unable to work for decades. Acknowledging our existence would be unbelievably expensive.

I’ve heard many patients argue that these facts are at the heart of why this condition and the people living with it have been so mistreated. But observing a set of facts isn’t the same thing as proving intent.

The ignorance may not be willful, merely convenient.

My most generous interpretation: everyone is the good guy in their own story and the motivation to remain the good guy can bend and distort all logic, data, reason and even empathy under its need. Less generous: it is *both* willful and highly convenient.

First, there is the argument that disability benefits can make patients worse by fostering a “culture of dependency.” Under a veneer of science, denying disabled people with ME the benefits that could prevent poverty, homelessness, death is not only cheap, it’s doctor-recommended.

Artifacts on display in the Library of Congress exhibit Echoes of the Great War: American Experiences of World War I demonstrate the human cost of the war, the government’s response and the ways in which injured veterans helped push forward—even if in a somewhat limited fashion—the disability rights movement.

During the war, 224,000 soldiers suffered injuries that sidelined them from the front. Roughly 4,400 returned home missing part or all of a limb. Of course, disability was not limited to missing limbs; as the “Boardwalk Empire” characters demonstrate, a soldier could come home with all limbs and digits intact yet struggle with mental wounds. Nearly 100,000 soldiers were removed from fighting for psychological injuries; 40,000 of them were discharged. By 1921, approximately 9,000 veterans had undergone treatment for psychological disability in veterans’ hospitals. As the decade progressed, greater numbers of veterans received treatment for “war neurosis.” Ultimately, whether mental or physical, 200,000 veterans would return home with a permanent disability.

The victim couldn't tell anyone what happened that night. She was a woman with an intellectual disability who doesn't speak words. So the alleged rape was discovered, according to the police report, only by accident — when a staff worker said she walked into the woman's room and saw her boss with his pants down.

hadn’t heard of Randolph Bourne until my cousin, a writer, suggested I seek him out. It turns out that 2018 marks the 100th anniversary of Bourne’s death. He was a wunderkind among American intellectuals, one of the country’s leading social critics, and a pioneer for people with disabilities - including me.

My ignorance of Bourne was embarrassing, because I have also written about my physical handicaps. When I was eight years old, I was diagnosed with a brain tumour and other ailments, and for the past 21 years have lived in a wheelchair.